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Living with CACNA1E

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Step one in our journey to find a cure for Princess Diyanna. We are lucky to find a team of researchers who are willing to take up the challenge. #cacna1e #princessdiyanna #fundraiser #childhoodepilepsy #reargeneticdisorders

Happy birthday to the woman who taught me how to be a mum! Love you mummy. Thank you for all you still do for me and Diyanna.. #celebration #livingournormal #bestgrandma #strongwomen

Today we had a trial for a standing frame and a disability car seat!! She was comfortable in both. Fingers crossed we get them ASAP. #cacna1e #livingournormal #princessdiyanna #reargeneticdisorders #physicaltherapy