Skip to content

Search for:

Living with CACNA1E

Home
Contact
About Us

Contact

Name(required)

Email(required)

Comment(required)

Instagram

My beauty is turning 6 today. It is a milestone I thought would not happen. She is God’s gift to us. Her life constantly reminds us the important things in life. She has made our family stronger. She is a fighter, an angel, a hero. Happy birthday my love. May God give you the strength to fight on. And we will be with you every step of the way. #cacna1e #livingournormal #specialneeds #childhoodepilepsy

For the second time in 2 weeks we are back in ED. Coughing fit lasting 2 hours with temperatures hitting 39 Celsius. Flu season is well and truly here.

To be a rare parent is..... words by Mick Might