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Living with CACNA1E
My beauty is turning 6 today. It is a milestone I thought would not happen. She is God’s gift to us. Her life constantly reminds us the important things in life. She has made our family stronger. She is a fighter, an angel, a hero. Happy birthday my love. May God give you the strength to fight on. And we will be with you every step of the way. #cacna1e #livingournormal #specialneeds #childhoodepilepsy
For the second time in 2 weeks we are back in ED. Coughing fit lasting 2 hours with temperatures hitting 39 Celsius. Flu season is well and truly here.
To be a rare parent is..... words by Mick Might
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