We Battle On

The past few months has been a mixed bag of events. From the height of celebrating Diyanna’s 6th birthday, a long overdue family trip, to the lowest point where Diyanna was in hospital.   Celebrating Diyanna's 6th Birthday Dinesh and I have always tried our best to ensure that we keep her safe. The lockdowns, restrictions, social distancing protocols, mask... Continue Reading →

CACNA1E

The past few months have been extremely hard for Diyanna. I will post a blog about the last few months soon but first I want to share some wonderful news we received on Friday afternoon. Diyanna has officially been diagnosed as having a variant of the gene CACNA1E mutation. This is the 1st step in... Continue Reading →

She is Three!

The joy I felt this morning cannot be described. We got through another year! She is three! A milestone which we were told might never come to pass. But here we are celebrating an amazing achievement. She is a fighter. And we will fight with her all the way and one day we will say... Continue Reading →

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